Mental Health Community Service User Survey 2015 Pennine Care NHS Foundation Trust

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1 Quality Health Mental Health Community Service User Survey 2015 Pennine Care NHS Foundation Trust Version 1.0 Produced 27 July 2015 by Quality Health Ltd

2 Survey results This report sets out the results from the 2015 Mental Health Community Service User Survey for Pennine Care NHS Foundation Trust, ordered in exactly the same way as the survey questionnaire sent to service users. All the figures shown are derived from the raw, unstandardised, data. Reading the columns of figures The results are shown firstly in absolute numbers (#) then as percentage responses (%). The first two columns show the data for the last time your organisation participated in the survey, the next two columns show your organisation's data for the current survey and the final two columns show the data for the other Quality Health client organisations participating in the survey. The purpose of presenting the figures in this way is to give a direct, at-a-glance, comparison between the organisation's 2015 results and the overall results from the Quality Health client database for this survey. Conventions The percentages are calculated after excluding those respondents that did not answer that particular question. All percentages are rounded to the nearest whole number. When added together, the percentages for all answers to a particular question may not total 100% because of this rounding. The Missing figures show the number of respondents who did not reply to that particular question. In some cases, the Missing figure is quite high because it includes respondents who did not answer that question or group of questions because it was not applicable to their circumstances (e.g. Q12). On some questions there are also some figures/responses which are italicised and marked with an asterisk. These figures have been recalculated to exclude responses where the question was not applicable to the respondent's circumstances, or they felt unable to give a definite answer. For example, on questions such as Q5 about whether the respondent was given enough time to discuss their needs and treatment, those not answering (Missing) and those saying "Don't know / can't remember" are excluded from the percentage calculated for the asterisked responses. Changes made to the data There are a number of questions which are routed (i.e. where staff are directed to a subsequent question depending on their answer to the lead question). Sometimes there are conflicts in the answers that staff give to these questions and the data is corrected to account for this. For example, if response 7 in question 1 is ticked and the respondent goes on to answer questions 2-42, then any data entered for these questions will be deleted as the respondent should not have answered them. Pennine Care NHS Foundation Trust Page 2 of 22

3 YOUR CARE AND TREATMENT 1. When was the last time you saw someone from the NHS mental health services? * In the last month % 96 48% % * 1-3 months ago 45 24% 49 25% % * 4-6 months ago 20 11% 31 16% % * 7-12 months ago 20 11% 19 10% 781 7% * More than 12 months ago 4 2% 5 3% 238 2% Don t know / can t remember 6 3% 4 2% 237 2% I have never seen anyone from NHS mental health services. 5 2% 6 3% 106 1% Missing Overall, how long have you been in contact with NHS mental health services? * Less than 1 year 37 20% 37 19% % * 1 to 5 years 73 39% 63 32% % * 6 to 10 years 14 8% 28 14% % * More than 10 years 56 30% 63 32% % * I am no longer in contact with NHS mental health services 6 3% 5 3% 253 2% Don t know / can t remember 6 3% 5 2% 309 3% Missing Pennine Care NHS Foundation Trust Page 3 of 22

4 YOUR CARE AND TREATMENT (continued) 3. In the last 12 months, do you feel you have seen NHS mental health services often enough for your needs? * Yes, definitely 99 52% % % * Yes, to some extent 57 30% 55 28% % * No 33 17% 41 21% % * It is too often 1 1% 0 0% 81 1% Don't know 5 3% 4 2% 397 4% Missing Pennine Care NHS Foundation Trust Page 4 of 22

5 YOUR HEALTH AND SOCIAL CARE WORKERS 4. * Yes, definitely % % % * Yes, to some extent 36 19% 45 23% % * No 6 3% 8 4% 703 6% Don t know / can t remember 7 4% 7 3% 350 3% Missing Were you given enough time to discuss your needs and treatment? * Yes, definitely % % % * Yes, to some extent 54 28% 38 20% % * No 12 6% 20 11% % Don t know / can t remember 5 3% 7 4% 392 4% Missing Did the person or people you saw listen carefully to you? Did the person or people you saw understand how your mental health needs affect other areas of your life? * Yes, definitely % % % * Yes, to some extent 62 34% 53 29% % * No 16 9% 19 10% % Don t know / can t remember 10 5% 11 6% 539 5% Missing Pennine Care NHS Foundation Trust Page 5 of 22

6 ORGANISING YOUR CARE 7. Have you been told who is in charge of organising your care and services? * Yes % % % * No 30 18% 35 21% % Not Sure 24 13% 27 14% % Missing a. Is the person in charge of organising your care and services... A CPN (Community Psychiatric Nurse) 56 28% 51 24% % Missing A psychotherapist / counsellor 12 6% 6 3% 535 5% Missing A social worker 24 12% 23 11% 841 7% Missing A psychiatrist 31 15% 32 15% % Missing A mental health support worker 28 14% 34 16% % Missing A GP 20 10% 25 12% % Missing Another type of NHS health or social care worker 8 4% 6 3% 414 4% Missing Don t know 2 1% 8 4% 443 4% Missing Pennine Care NHS Foundation Trust Page 6 of 22

7 ORGANISING YOUR CARE (continued) 9. Do you know how to contact this person if you have a concern about your care? * Yes % % % * No 2 1% 6 4% 230 3% Not sure 2 1% 5 4% 264 4% Missing How well does this person organise the care and services you need? Very well 80 59% 85 64% % Quite well 45 33% 40 30% % Not very well 8 6% 8 6% 428 6% Not at all well 3 2% 0 0% 188 3% Missing Pennine Care NHS Foundation Trust Page 7 of 22

8 PLANNING YOUR CARE 11. Have you agreed with someone from NHS mental health services what care you will receive? Yes, definitely 87 46% 93 48% % Yes, to some extent 60 32% 56 29% % No 41 22% 44 23% % Missing * Yes, definitely 82 58% 91 64% % * Yes, to some extent 54 38% 42 29% % * No, but I wanted to be 5 4% 10 7% 551 7% No, but I did not want to be 3 2% 1 1% 91 1% Don t know / can t remember 4 3% 9 6% 390 5% Missing Were you involved as much as you wanted to be in agreeing what care you will receive? Does this agreement on what care you will receive take your personal circumstances into account? * Yes, definitely 82 59% 98 71% % * Yes, to some extent 53 38% 34 25% % * No 4 3% 6 4% 525 7% Don t know / can t remember 7 5% 13 9% 526 6% Missing Pennine Care NHS Foundation Trust Page 8 of 22

9 REVIEWING YOUR CARE 14. * Yes % % % * No 43 24% 53 28% % Don t know / can t remember 16 8% 9 5% 798 7% Missing * Yes, definitely 75 58% 80 60% % * Yes, to some extent 51 40% 45 34% % * No, but I wanted to be 3 2% 8 6% 468 7% No, but I did not want to be 1 1% 1 1% 72 1% Don t know / can t remember 4 3% 2 1% 172 2% Missing In the last 12 months have you had a formal meeting with someone from NHS mental health services to discuss how your care is working? Were you involved as much as you wanted to be in discussing how your care is working? Did you feel that decisions were made together by you and the person you saw during this discussion? * Yes, definitely 78 60% 86 64% % * Yes, to some extent 45 35% 41 30% % * No 7 5% 8 6% 532 8% I did not want to be involved in making decisions 1 1% 0 0% 63 1% Don t know / can t remember 3 2% 2 1% 196 3% Missing Pennine Care NHS Foundation Trust Page 9 of 22

10 CHANGES IN WHO YOU SEE 17. * Yes 58 34% 67 38% % * Yes, but this was because I moved home 2 1% 3 2% 224 2% * No % 98 56% % * My care has started but not changed 7 4% 8 5% 310 3% Don t know / not sure 15 8% 18 9% 850 8% Missing * It got better 17 33% 18 30% % * It stayed the same 26 50% 23 38% % * It got worse 9 17% 19 32% % Not sure 5 9% 9 13% % Missing In the last 12 months, have the people you see for your care or services changed? What impact has this had on the care you receive? Did you know who was in charge of organising your care while this change was taking place? * Yes 28 55% 40 63% % * No 23 45% 24 38% % Not sure 9 15% 7 10% % Missing Pennine Care NHS Foundation Trust Page 10 of 22

11 CRISIS CARE 20. * Yes % % % * No 52 30% 58 33% % Not sure 12 6% 18 9% % Missing Do you know who to contact out of office hours if you have a crisis? In the last 12 months, have you tried to contact this person or team because your condition was getting worse? * Yes 49 41% 43 37% % * No 70 59% 74 63% % Can t remember 7 6% 3 3% 154 2% Missing When you tried to contact them, did you get the help you needed? Yes, definitely 27 55% 27 63% % Yes, to some extent 15 31% 10 23% % No 7 14% 6 14% % I could not contact them 0 0% 0 0% 68 3% Missing Pennine Care NHS Foundation Trust Page 11 of 22

12 TREATMENTS 23. In the last 12 months, have you been receiving any medicines for your mental health needs? Yes % % % No 21 11% 30 15% % Missing Were you involved as much as you wanted to be in decisions about which medicines you receive? * Yes, definitely 74 51% 84 54% % * Yes, to some extent 54 37% 57 37% % * No, but I wanted to be 18 12% 15 10% % No, but I did not want to be 13 8% 8 5% 422 5% Don t know / can t remember 10 6% 3 2% 432 5% Missing In the last 12 months, have you been prescribed any new medicines for your mental health needs? Yes 77 45% 77 46% % No 94 55% 91 54% % Missing Pennine Care NHS Foundation Trust Page 12 of 22

13 TREATMENTS (continued) 26. The last time you had a new medicine prescribed for your mental health needs, were you given information about it in a way that you were able to understand? Yes, definitely 41 54% 48 60% % Yes, to some extent 23 30% 19 24% % No 9 12% 11 14% % I was not given any information 3 4% 2 3% 134 3% Missing * Yes % % % * No 21 13% 20 12% % Not sure 6 4% 5 3% 229 2% Missing Have you been receiving any medicines for your mental health needs for 12 months or longer? In the last 12 months, has an NHS mental health worker checked with you about how you are getting on with your medicines? * Yes % % % * No 30 21% 32 24% % Don t know / can t remember 3 2% 5 4% 397 5% Missing Pennine Care NHS Foundation Trust Page 13 of 22

14 TREATMENTS (continued) 29. * Yes 59 40% 55 40% % * No, but I would have liked this 45 30% 28 20% % * No, but I did not mind 45 30% 54 39% % This was not appropriate for me 28 15% 46 24% % Don t know / can t remember 13 7% 12 6% 705 7% Missing In the last 12 months, have you received any treatments or therapies for your mental health needs that do not involve medicines? Were you involved as much as you wanted to be in deciding what treatments or therapies to use? * Yes, definitely 33 58% 33 61% % * Yes, to some extent 22 39% 16 30% % * No, but I wanted to be 2 4% 5 9% 343 9% No, but I did not want to be 0 0% 0 0% 70 2% Don t know / can t remember 2 3% 1 2% 95 2% Missing Pennine Care NHS Foundation Trust Page 14 of 22

15 OTHER AREAS OF LIFE 31. * Yes, definitely 49 45% 44 40% % * Yes, to some extent 29 27% 36 33% % * No, but I would have liked help or advice with finding support 31 28% 29 27% % I have support and did not need help / advice to find it 23 12% 30 16% % I do not need support for this 29 16% 34 18% % I do not have physical health needs 24 13% 20 10% % Missing In the last 12 months, did NHS mental health services give you any help or advice with finding support for physical health needs? In the last 12 months, did NHS mental health services give you any help or advice with finding support for financial advice or benefits? * Yes, definitely 46 40% 41 35% % * Yes, to some extent 26 23% 35 30% % * No, but I would have liked help or advice with finding support 43 37% 40 34% % I have support and did not need help / advice to find it 30 16% 26 13% % I do not need support for this 43 23% 51 26% % Missing Pennine Care NHS Foundation Trust Page 15 of 22

16 OTHER AREAS OF LIFE (continued) 33. * Yes, definitely 15 33% 15 27% % * Yes, to some extent 13 29% 18 32% % * No, but I would have liked help or advice with finding support 17 38% 23 41% % I have support and did not need help / advice to find it 10 5% 12 6% 572 5% I do not need support for this 48 26% 54 29% % I am not currently in or seeking work 82 44% 66 35% % Missing * Yes, definitely 18 40% 17 39% % * Yes, to some extent 13 29% 13 30% % * No, but I would have liked help or advice with finding support 14 31% 14 32% % I have support and did not need help / advice to find it 22 12% 27 14% % I do not need support for this % % % Missing In the last 12 months, did NHS mental health services give you any help or advice with finding support for finding or keeping work? In the last 12 months, did NHS mental health services give you any help or advice with finding support for finding or keeping accommodation? Has someone from NHS mental health services supported you in taking part in an activity locally? * Yes, definitely 30 31% 34 36% % * Yes, to some extent 30 31% 24 26% % * No, but I would have liked this 37 38% 36 38% % I did not want this / I did not need this 88 48% 99 51% % Missing Pennine Care NHS Foundation Trust Page 16 of 22

17 OTHER AREAS OF LIFE (continued) 36. * Yes, definitely 87 66% 80 58% % * Yes, to some extent 29 22% 31 22% % * No, not as much as I would like 14 11% 23 17% % * No, they have involved them too much 2 2% 4 3% 200 3% My friends or family did not want to be involved 6 3% 4 2% 289 3% I did not want my friends or family to be involved 21 11% 25 13% % This does not apply to me 29 15% 24 13% % Missing Have NHS mental health services involved a member of your family or someone else close to you as much as you would like? Have you been given information by NHS mental health services about getting support from people who have experience of the same mental health needs as you? * Yes, definitely 36 30% 31 26% % * Yes, to some extent 36 30% 32 27% % * No, but I would have liked this 47 39% 56 47% % I did not want this 64 35% 71 37% % Missing Do the people you see through NHS mental health services understand what is important to you in your life? Yes, always 74 41% 91 48% % Yes, sometimes 75 41% 73 38% % No 32 18% 27 14% % Missing Pennine Care NHS Foundation Trust Page 17 of 22

18 OTHER AREAS OF LIFE (continued) Do the people you see through NHS mental health services help you with what is important to you? Yes, always 69 38% 92 48% % Yes, sometimes 75 42% 68 36% % No 36 20% 30 16% % Missing Do the people you see through NHS mental health services help you feel hopeful about the things that are important to you? Yes, always 62 34% 91 48% % Yes, sometimes 86 48% 66 35% % No 32 18% 32 17% % Missing Pennine Care NHS Foundation Trust Page 18 of 22

19 OVER 41. Overall * 0 7 4% 7 4% 289 3% * 1 1 1% 3 2% 227 2% * 2 3 2% 0 0% 291 3% * 3 8 4% 5 3% 485 5% * 4 6 3% 9 5% 490 5% * % 20 11% % * % 14 8% 837 8% * % 28 15% % * % 39 21% % * % 23 12% % * % 37 20% % Ambiguous 1 1% 1 1% 106 1% Missing Overall in the last 12 months, did you feel that you were treated with respect and dignity by NHS mental health services? Yes, always % % % Yes, sometimes 37 20% 29 15% % No 10 5% 13 7% 759 7% Missing Pennine Care NHS Foundation Trust Page 19 of 22

20 ABOUT YOU Age. Who was the main person or people that filled in this questionnaire? The service user / client (named on the front of the envelope) % % % A friend or relative of the service user / client 54 27% 33 17% % Both service user / client and friend / relative together 26 13% 22 11% % The service user / client with the help of a health professional 4 2% 3 2% 364 3% Missing Are you male or female? Male 83 43% 84 42% % Female % % % Missing These have been derived from Q45: "What was your year of birth" % 28 14% % % 43 22% % % 53 27% % % 72 37% % Missing Pennine Care NHS Foundation Trust Page 20 of 22

21 ABOUT YOU (continued) What is your religion? No religion 31 16% 42 21% % Buddhist 0 0% 1 0% 90 1% Christian % % % Hindu 1 1% 1 0% 123 1% Jewish 1 1% 4 2% 84 1% Muslim 14 7% 11 5% 374 3% Sikh 0 0% 0 0% 70 1% Other 9 5% 3 1% 313 3% I would prefer not to say 3 2% 4 2% 403 4% Missing Which of the following best describes how you think of yourself? Heterosexual / straight % % % Gay / lesbian 4 2% 4 2% 259 2% Bisexual 2 1% 3 2% 205 2% Other 2 1% 1 1% 145 1% I would prefer not to say 12 6% 13 7% 644 6% Missing Pennine Care NHS Foundation Trust Page 21 of 22

22 ABOUT YOU (continued) 48. What is your ethnic group? English / Welsh / Scottish / Northern Irish / British % % % Irish 4 2% 3 1% 126 1% Gypsy or Irish Traveller 0 0% 0 0% 15 0% Any other White background 4 2% 3 1% 283 3% White and Black Caribbean 1 1% 0 0% 81 1% White and Black African 0 0% 2 1% 36 0% White and Asian 2 1% 0 0% 53 0% Any other Mixed / multiple ethnic background 1 1% 1 0% 49 0% Indian 2 1% 2 1% 213 2% Pakistani 8 4% 4 2% 106 1% Bangladeshi 2 1% 4 2% 52 0% Chinese 0 0% 0 0% 36 0% Any other Asian background 0 0% 1 0% 84 1% African 3 2% 0 0% 177 2% Caribbean 0 0% 1 0% 157 1% Any other Black / African / Caribbean background 0 0% 0 0% 37 0% Arab 0 0% 0 0% 30 0% Any other ethnic group 0 0% 0 0% 31 0% Missing Pennine Care NHS Foundation Trust Page 22 of 22

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