TOTAL PUBLIC IDD SPENDING FOR SERVICES: FY $ % 42% Fiscal Year PUBLIC IDD SPENDING BY REVENUE SOURCE: FY 2015

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1 Billions of 215 Dollars $8. $7. $6. TOTAL PUBLIC IDD SPENDING FOR SERVICES: FY Non-Medicaid Spending Waiver, ICF/ID & Related Medicaid $6.32 $6.61 $7.15 $5. $4. $4.2 $3. $2.73 $2. $ % 61% 6% $. 49% 42% 29% PUBLIC IDD SPENDING BY REVENUE SOURCE: FY 215 6% 1% Tittle XX/SSBG ICF/ID 39% HCBS Waiver STATE $3.71 Billion 52% 48% FEDERAL $3.44 Billion 29% Waiver SSI/ADC Total: $7.15 Billion 13% 2% Related Medicaid Other Federal Spending ($) Per $1, Personal Income $5. $4. $3. $2.$1.8 $. $ FISCAL EFFORT FOR IDD SERVICES: FY All Services and Settings Community/Family Services Institutional Services $2.22 $1.22 $2.77 $2.9 $.67 $3.35 $2.89 $.47 $3.5 $3.44 $3.14 $3.23 $.3 $.27

2 Participants $.9 Billions of 215 Dollars $1.5 $1.2 FEDERAL IDD MEDICAID SPENDING BY REVENUE SOURCE HCBS Waiver Related Medicaid* ICF/ID $1.19 $1.34 $.93 $.6 $.3 $.62 $.63 $.35 $.42 $.45 $.42 $.35 $.22 $. $.3 $.7 $ *In 215, "Related Medicaid" was targeted case management ($165. million) and administration ($289.2 million). FEDERAL-STATE MEDICAID AS A PERCENTAGE OF TOTAL IDD SPENDING IN FY 215 Related Medicaid Medicaid ICF/ID 13% 1% 22% Other State Funds Medicaid HCBS 37% 18% Other Federal Funds Total IDD Spending: $7.15 Billion Total Federal-State Medicaid: $4.29 Billion (6%) 15, HCBS WAIVER PARTICIPANTS ADJUSTED WAIVER COST PER PARTICIPANT $ , 9, 6, 57,533 13, ,232 $3. $2. $3.5 $28.7 $22.9 $23.1 3, 15,594 3, $1. $ Cost in 215 Dollars (in $1,s)$4.$. 2

3 Average Daily Residents 8, 6, 48,495 4,36,519 PERSONS WITH IDD BY SIZE OF SETTING: FY Total persons 6 or fewer persons 16+ persons 7-15 persons 54,854 44,746 56,686 48,965 58,69 59,797 52,647 54,35 2, 9,338 7,933 5,978 2,175 1,743 4,39 3,886 2,638 1,572 1, PERSONS SERVED BY SETTING: FY TOTAL 52,963 54,95 54,854 55,427 56,237 55,388 55,997 56,686 55,294 55,713 58,26 58,69 59,28 59, PERSONS 8,384 8,213 7,933 7,731 7,44 6,793 6,378 5,978 5,51 5,17 4,741 4,39 4,22 3,886 Nursing Facilities 1,479 1,653 1,632 1,643 1,679 1,48 1,467 1,48 1,312 1,241 1,26 1,187 1,139 1,146 State Institutions 3,726 3,471 3,334 3,237 3,25 2,658 2,39 2,194 1,97 1,774 1,584 1,348 1,148 1,11 Private ICF/ID 1,91 1,73 1,42 1, Other Residential 2,88 2,16 1,925 1,828 1,711 1,699 1,594 1,482 1,415 1,326 1,22 1, PERSONS 2,386 2,254 2,175 2,33 1,919 1,89 1,81 1,743 1,679 1,632 1,66 1,572 1,67 1,561 Public ICF/ID Private ICF/ID Other Residential 1,87 1,773 1,74 1,584 1,478 1,458 1,374 1,331 1,31 1,27 1,243 1,196 1,247 1,219 <6 PERSONS 42,193 43,628 44,746 45,663 46,914 46,75 47,89 48,965 48,114 48,974 51,859 52,647 53,651 54,35 Public ICF/ID Private ICF/ID 5,642 5,854 5,935 6,4 6,89 6,1 6,34 6,86 6,21 6,211 6,246 6,254 6,28 6,262 Supported Living 16,29 16,854 17,528 18,36 19,145 19,47 19,766 2,521 21,459 22,126 22,797 23,547 24,34 25,4 Other Residential 2,342 2,92 21,283 21,353 21,68 21,657 22,9 22,358 2,454 2,637 22,816 22,846 23,67 23,84 12, PERSONS IN PUBLIC AND PRIVATE 16+ INSTITUTIONS: FY Persons Served 9, 9,338 7,933 Nursing Facilities Private 16+ Public 16+ 6, 5,978 4,39 3,886 3,

4 Millions of 215 Dollars $1,. $8. $6. INDIVIDUAL AND FAMILY SUPPORT Family Support Supported Living Supported Employment SPENDING: FY $465.6 $728. $57.8 $754. $598.5 $844.1 $666.2 $4. $218.7 $2. $1.2 $314.9 $121.3 $92. $.$73.2 $98.3 $9.7 Number of Participants 15, 12, 9, , 41,788 Family Support Supported Living Supported Employment PARTICIPANTS: FY ,96 92,526 14,99 116,781 3, 1,782 16,29 19,766 23,547 25,4 Billions of 215 Dollars $2. $1.5 7,115 9,289 1,627 9,927 1, SUPPORTED LIVING, FAMILY SUPPORT AND SUPPORTED EMPLOYMENT SPENDING: FY Federal-State HCBS Waiver Spending Non-Waiver Spending $1.33 $1.44 $1.6 $.9 $.5 $.39 1% 52% 32% 28% 15% $

5 SUPPORTED LIVING, FAMILY SUPPORT, AND SUPPORTED EMPLOYMENT AS A PERCENTAGE OF TOTAL SPENDING: FY Person or fewer ICF/ID 7-15 Person settings (1%) Public institutions (16+) 4% Private institutions (16+)(1%) 7% Supported employment (1%) 12% Family support 9% 65% 6 person or fewer HCBS Waiver or state funded group, foster or host homes, & related community services Supported living/ Personal assistance TOTAL SPENDING $7.15 Billion TOTAL DAY/WORK AND SUPPORTED EMPLOYMENT PARTICIPANTS : FY Participants 1, 8, 6, 4, Total Day Work (Including Supported Employment) Percent Supported Employment 49,596 5,528 53,632 5,43 45,433 41,456 37,753 63,4 85,92 79,822 75,45 72,634 2, 17,272 1% % 13% 11% 16% 18% 18% 17% 18% 15% 15% 14% 12% 12%

6 ESTIMATED NUMBER OF INDIVIDUALS WITH IDD BY LIVING ARRANGEMENT: FY 215 Supervised Residential Setting 59,797 (1%) 1,871 (16%) With Family Caregiver 456,428 (74%) Alone or with Roommate TOTAL: 617,96 PERSONS Braddock et al. 216, based on Fujiura 28, 212 ESTIMATED NUMBER OF INDIVIDUALS WITH IDD BY AGE GROUP LIVING WITH FAMILY CAREGIVERS: FY 215 Caregiver Age 6+ Caregiver Age <41 197,658 (43%) 98,655 (22%) 16,115 (35%) Caregiver Age Thousands of Families TOTAL: 456,428 PERSONS Braddock et al. 216, based on Fujiura 28, 212 ESTIMATED NUMBER OF IDD CAREGIVING FAMILIES AND FAMILIES SUPPORTED BY IDD AGENCIES: FY Total IDD Caregiving Families Families Supported by State IDD Agencies % 9% 13% % 22% 23% 26% Source: Braddock et al., Coleman Institute and Department of Psychiatry, University of Colorado,