TOTAL PUBLIC IDD SPENDING FOR SERVICES: FY $ % Fiscal Year PUBLIC IDD SPENDING BY REVENUE SOURCE: FY FEDERAL $327.

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1 $7. $6. $5. $4. TOTAL PUBLIC IDD SPENDING FOR SERVICES: FY Non-Medicaid Spending Waiver, ICF/ID & Related Medicaid $44.5 $485.9 $549.1 $624.5 $3. $262. $189.9 $2. $1. 64% 7% 73% 76% 74% 3% PUBLIC IDD SPENDING BY REVENUE SOURCE: FY 215 7% ICF/ID STATE $266.6 Million 43% 52% FEDERAL $327. Million 61% HCBS Waiver 5% 28% Waiver SSI/ADC LOCAL $3.8 Million 4% Related Medicaid Total: $624.5 Million Spending ($) Per $1, Personal Income $4. $3. FISCAL EFFORT FOR IDD SERVICES: FY All Services and Settings Community/Family Services Institutional Services $2.11 $2.2 $2. $1.28 $1.37 $2.15 $2.5 $2.21 $2.29 $1.94 $1.95 $2.2 $2.14 $1. $.83 $.65 $.11 $.21 $.19 $

2 Participants $25. $2. FEDERAL IDD MEDICAID SPENDING BY REVENUE SOURCE HCBS Waiver ICF/ID Related Medicaid* $2.7 $15. $125.7 $169.8 $1. $52.3 $5. $31.6 $26.6 $22.4 $31.5 $15.3 $3. $21. $1.8 $11. $ *In 215, "Related Medicaid" was targeted case management ($1.6 million) and administration ($1.5 million). FEDERAL-STATE MEDICAID AS A PERCENTAGE OF TOTAL IDD SPENDING IN FY 215 7% 4% Medicaid ICF/ID 11% Related Medicaid State Funds Medicaid HCBS 63% 15% Other Federal Funds Total IDD Spending: $624.5 Million Total Federal-State Medicaid: $463.2 Million (74%) 12, 9, HCBS WAIVER PARTICIPANTS 1,538 8,72 7,352 6,617 4,38 Cost in 215 Dollars (in $1,s) $7. $6. $5. $5. $4. $3. ADJUSTED WAIVER COST PER PARTICIPANT $47.7 $62.3 $57.9 $53.6 $45.4 $42.1 $37.5 3, 6 1,639 2, $2. $

3 Average Daily Residents PERSONS WITH IDD BY SIZE OF SETTING: FY , 9, Total persons 6 or fewer persons 16+ persons 7-15 persons 7,748 6,773 8,81 7,92 9,64 8,578 1,58 1,79 4,956 3,95 3, PERSONS SERVED BY SETTING: FY TOTAL 4,956 6,391 7,168 7,33 7,438 7,583 7,748 7,858 7,926 8,155 8,27 8,81 9,123 8,995 8,971 9,64 9,45 1, PERSONS Nursing Facilities State Institutions Private ICF/ID Other Residential 7-15 PERSONS Public ICF/ID Private ICF/ID Other Residential <6 PERSONS 3,95 5,428 6,229 6,378 6,55 6,665 6,773 6,893 7,2 7,381 7,137 7,92 8,512 8,42 8,481 8,578 8,95 1,79 Public ICF/ID Private ICF/ID Supported Living 1,26 2,656 3,354 3,46 3,424 3,469 3,526 3,581 3,617 3,53 3,587 4,181 4,168 4,64 4,139 4,126 4,79 5,58 Other Residential 2,674 2,756 2,859 2,92 3,65 3,18 3,231 3,295 3,365 3,83 3,527 3,717 4,323 4,336 4,322 4,431 4,81 4,998 Persons Served PERSONS IN PUBLIC AND PRIVATE 16+ INSTITUTIONS: FY Nursing Facilities Private 16+ Public

4 $1. $8. $6. $4. INDIVIDUAL AND FAMILY SUPPORT Supported Living Supported Employment Family Support SPENDING: FY $65.6 $62.3 $53. $69.4 Number of Participants $21.8 $2. $9.8 5, 4, 3, 2, 1, $12. $7.6 $7.4 $4.6 $ ,498 1, Supported Living Family Support Supported Employment PARTICIPANTS: FY , 3,424 2, ** Does not include 36 follow-long work support workers in 214 and 346 workers in ,796 3,587 1,516 SUPPORTED LIVING, FAMILY SUPPORT AND SUPPORTED EMPLOYMENT SPENDING: FY Federal-State HCBS Waiver Spending Non-Waiver Spending $1.6 4,126 2,183 2,38 $14.4 $5.6 5,58 3,413 2,173 $9. $8.8 $89.4 $7.1 $69.7 $66. $6. $36.2 $3. 1% 4 25% 18% 23% 16% 16%

5 SUPPORTED LIVING, FAMILY SUPPORT, AND SUPPORTED EMPLOYMENT AS A PERCENTAGE OF TOTAL SPENDING: FY Person settings (1%) 6 Person or fewer ICF/ID (1%) Public institutions (16+) Supported employment (2%) Family support (1%) Supported living/ Personal assistance 6% 11% 78% 6 person or fewer HCBS Waiver or state funded group, foster or host homes, & related community services TOTAL SPENDING $624.5 Million TOTAL DAY/WORK AND SUPPORTED EMPLOYMENT PARTICIPANTS : FY Participants 1, 8, Total Day Work (Including Supported Employment) Percent Supported Employment 7,113 7,57 4,277 4, 3,438 3,654 4,667 5,658 6,5 5,611 5,257 5,223 5,68 5,313 6,227 2, 24% 39% 44% 45% 35% 35% 4% 38% 36% 35% 26% 25% 33% 34%

6 ESTIMATED NUMBER OF INDIVIDUALS WITH IDD BY LIVING ARRANGEMENT: FY 215 1,58 (12%) Supervised Residential Setting With Family Caregiver 61,677 (72%) 13,631 (16%) Alone or with Roommate TOTAL: 85,816 PERSONS Braddock et al. 216, based on Fujiura 28, 212 ESTIMATED NUMBER OF INDIVIDUALS WITH IDD BY AGE GROUP LIVING WITH FAMILY CAREGIVERS: FY 215 Caregiver Age 6+ Caregiver Age <41 27,634 (45%) 12,47 (2%) 21,636 (35%) Caregiver Age Thousands of Families TOTAL: 61,677 PERSONS Braddock et al. 216, based on Fujiura 28, 212 ESTIMATED NUMBER OF IDD CAREGIVING FAMILIES AND FAMILIES SUPPORTED BY IDD AGENCIES: FY Total IDD Caregiving Families Families Supported by State IDD Agencies % 5% 8% 8% 7% 4% 6%

TOTAL PUBLIC IDD SPENDING FOR SERVICES: FY $ % 42% Fiscal Year PUBLIC IDD SPENDING BY REVENUE SOURCE: FY 2015

TOTAL PUBLIC IDD SPENDING FOR SERVICES: FY $ % 42% Fiscal Year PUBLIC IDD SPENDING BY REVENUE SOURCE: FY 2015 Billions of 215 Dollars $8. $7. $6. TOTAL PUBLIC IDD SPENDING FOR SERVICES: FY 1977-215 Non-Medicaid Spending Waiver, ICF/ID & Related Medicaid $6.32 $6.61 $7.15 $5. $4. $4.2 $3. $2.73 $2. $1.52 56% 61%

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