Systemic Anti Cancer Therapy (SACT) CTYA SSCRG. Kellie Peters

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1 Systemic Anti Cancer Therapy (SACT) CTYA SSCRG Kellie Peters

2 What is currently available and how do I gain access? Nationally Coverage Map Numbers in Treatment Top Regimens Area Team Data Completeness Benchmarking Hospital Post Chemo Mortality Data Completeness Top Regimens

3 Coverage Map: A National Perspective

4 So what do the numbers tell us? The figures listed above represent the number of patients reported to the CIU through SACT, for whom treatment activity has been submitted for the period covering October 2013 through September 2014 inclusive.

5 How good is the data nationally? SACT Data Completeness report (October 2013 to September 2014) England All Diagnostic Groups Number of patients % NHS Number % Date of Birth % Current gender % Ethnicity % Patient postcode 158, % M 100% M 99% 94% 100% M Number of tumour records 170,642 85% 91% 92% 100% 53% 37% Number of regimens % GP Practice Code % Programme number % GMC Code % Regimen number % Consultant Specialty % Treatment intent % Primary diagnosis % Regimen name % Morphology % Height at start of regimen % Stage of disease at start of programme % Weight at start of regimen % Performance Status at start of regimen 262,166 71% 62% 80% 100% M 58% 59% 40% % Comorbidity adjustment % Date of decision to treat % Start date of regimen % Clinical trial % Chemo radiation % Number of cycles planned Number of cycles 42% 86% 100% M 76% 65% 60% 711, % M 95% 57% 41% 57% 86% Number of drug records % Cycle number % Drug name % Start date of cycle % Actual dose per administration % Weight at start of cycle % Administration route % Performance Status at start of cycle % Administration date % OPCS procurement code % OPCS Delivery code % of Cycles with Drug records % Organisation code of drug provider 1,858, % 93% 94% 100% 64% 96% Number of outcome records % Date of Final Treatment % Regimen modification (dose reduction) % Regimen modification (time delay) % Regimen modification (stopped early) % Regimen outcome summary % Date of death 173,353 29% 50% 22% 42% 7% 4% 66% of regimens

6 Number of patients Number of tumour records Number of regimens Number of cycles Number of drug records Number of outcome records % Current gender % Ethnicity % Primary diagnosis % Morphology % Treatment intent % Height at start of regimen % Weight at start of regimen % Performance Status at start of regimen % Comorbidity adjustment % Clinical trial % Chemo radiation % Start date of cycle % Weight at start of cycle % Performance Status at start of cycle % Drug name % Actual dose per administration % Date of Final Treatment % Regimen outcome summary SACT data completeness for paediatrics (Under 16), October 2013 to September 2014 Diagnostic Group > NHS England Area Team > Hospital Trust Paediatrics (under 16) 1,354 1,459 3,289 6,799 25,112 1,899 99% 90% 99% 70% 67% 22% 67% 22% 24% 82% 63% 83% 77% 26% 100% 79% 51% 2% Birmingham and the Black Country ,173 5, % 90% 100% 75% 94% 2% 60% 32% 51% 96% 93% 100% 91% 31% 100% 100% 92% 7% Birmingham Children's Hospital NHS Foundation Trust ,096 5, % 97% 100% 84% 100% 0% 63% 32% 53% 99% 96% 100% 94% 32% 100% 100% 100% 8% Shrewsbury and Telford Hospital NHS Trust % 100% 100% 75% 90% 0% 30% 40% 40% 90% 60% 100% 94% 44% 100% 100% 100% 0% University Hospital of North Staffordshire NHS Trust % 100% 100% 91% 100% 86% 86% 86% 7% 100% 100% 95% 95% 0% 100% 99% 14% 0% University Hospitals Birmingham NHS Foundation Trust % 42% 100% 0% 0% 0% 0% 0% 44% 44% 44% 100% 0% 0% 0% 0% Wye Valley NHS Trust % 0% 100% 0% 100% 100% 100% 0% 0% 100% 0% 100% 0% 0% 0% 0% Bristol, North Somerset, Somerset and South Gloucestershire % 40% 100% 84% 89% 0% 67% 13% 48% 92% 81% 95% 58% 10% 100% 98% 67% 18% Great Western Hospitals NHS Foundation Trust % 100% 100% 14% 0% 0% 0% 0% 0% 7% 0% 20% 0% 0% 100% 0% 0% 0% Royal Cornwall Hospitals NHS Trust % 100% 100% 100% 100% 0% 0% 0% 0% 100% 80% 100% 0% 0% 100% 100% 100% 0% Taunton and Somerset NHS Foundation Trust % 100% 100% 75% 100% 0% 93% 0% 100% 100% 100% 100% 81% 0% 100% 100% 16% 18% University Hospitals Bristol NHS Foundation Trust % 18% 100% 91% 97% 0% 69% 22% 33% 100% 84% 99% 52% 17% 99% 22% Cheshire, Warrington and Wirral % 96% 100% 94% 82% 8% 48% 0% 0% 98% 20% 100% 49% 0% 100% 0% Alder Hey Children's NHS Foundation Trust % 100% 100% 96% 69% 15% 96% 0% 0% 100% 40% 100% 98% 0% 100% 0% Central Manchester University Hospitals NHS Foundation Trust % 92% 100% 92% 94% 0% 0% 0% 0% 96% 0% 100% 0% 0% 100% 0% Cumbria, Northumberland, Tyne and Wear % 100% 100% 38% 96% 8% 58% 4% 58% 100% 81% 100% 58% 4% 100% 100% 38% 0% The Newcastle Upon Tyne Hospitals NHS Foundation Trust % 100% 100% 38% 96% 8% 58% 4% 58% 100% 81% 100% 58% 4% 100% 100% 38% 0% East Anglia % 100% 100% 21% 100% 0% 0% 0% 0% 95% 100% 99% 0% 0% 100% 0% 100% 14% Norfolk and Norwich University Hospitals NHS Foundation Trust % 100% 100% 21% 100% 0% 0% 0% 0% 95% 100% 99% 0% 0% 100% 0% 100% 14% Leicestershire and Lincolnshire , % 98% 81% 50% 99% 3% 99% 20% 76% 100% 99% 100% 99% 35% 100% 93% 2% 2% Northampton General Hospital NHS Trust % 100% 100% 0% 100% 13% 100% 100% 100% 100% 100% 100% 100% 100% 100% 99% 9% 9% Nottingham University Hospitals NHS Trust % 100% 100% 0% 100% 0% 100% 0% 100% 100% 100% 100% 98% 0% 100% 100% 2% 0% University Hospitals of Leicester NHS Trust , % 100% 67% 89% 100% 2% 100% 2% 42% 100% 100% 100% 100% 29% 100% 91% 0% 0% London Commissioning Region ,740 4,069 11, % 91% 100% 73% 43% 33% 61% 27% 17% 97% 51% 71% 71% 32% 100% 83% 21% 0% Chelsea and Westminster Hospital NHS Foundation Trust % 100% 100% 11% 100% 100% 100% 0% 100% 100% 78% 100% 100% 0% 100% 100% 0% 0% Epsom and St Helier University Hospitals NHS Trust % 100% 100% 0% 0% 0% 0% 0% 0% 0% 0% 0% 0% 0% 0% 0% Great Ormond Street Hospital For Children NHS Foundation Trust , % 100% 99% 69% 100% 4% 97% 72% 100% 100% 99% 100% 98% 95% 100% 100% 78% 0% King's College Hospital NHS Foundation Trust % 100% 100% 100% 100% 100% 100% 0% 100% 100% 100% 100% 100% 0% 100% 100% 50% 0% North West London Hospitals NHS Trust % 100% 100% 0% 100% 100% 100% 100% 100% 100% 100% 100% 100% 100% 100% 0% 0% 0% St George's Healthcare NHS Trust % 0% 100% 0% 100% 100% 100% 100% 100% 100% 100% 100% 100% 100% 100% 100% 0% 0% The Royal Marsden NHS Foundation Trust ,251 3,189 6, % 100% 100% 100% 22% 40% 47% 21% 0% 100% 36% 63% 64% 28% 100% 75% 0% 0% University College London Hospitals NHS Foundation Trust , % 47% 100% 0% 98% 27% 99% 0% 1% 76% 76% 100% 98% 0% 100% 89% 81% 0% South Yorkshire and Bassetlaw , % 100% 100% 54% 99% 25% 95% 0% 0% 0% 59% 100% 98% 0% 100% 44% 96% 0% Leeds Teaching Hospitals NHS Trust , % 100% 100% 100% 99% 27% 93% 0% 0% 0% 100% 100% 97% 0% 100% 1% 100% 0% Sheffield Children's NHS Foundation Trust , % 100% 100% 0% 100% 22% 99% 0% 0% 0% 0% 100% 99% 1% 100% 100% 90% 0% Surrey and Sussex % 100% 100% 60% 100% 10% 80% 20% 100% 100% 100% 100% 100% 55% 100% 100% 60% 0% Western Sussex Hospitals NHS Trust % 100% 100% 60% 100% 10% 80% 20% 100% 100% 100% 100% 100% 55% 100% 100% 60% 0% Wessex % 100% 100% 0% 0% 0% 0% 0% 0% 0% 0% 100% 0% 0% 0% 0% Dorset County Hospital NHS Foundation Trust % 100% 100% 0% 0% 0% 0% 0% 0% 0% 0% 100% 0% 0% 0% 0%

7 Can I find out how complete my hospital s SACT data is?

8 Online Regimen Mapping Tool Launched Providers now have the responsibility to map their local regimen names to nationally recognised regimen nomenclature using the new mapping tool. The tool was tested by members of the SACT User Group, before being launched on the upload portal. Using feedback, the written guidelines and step by step guide have been produced in conjunction with senior pharmacists who are supporting the team. We currently have over 50 registered users with the new role of Regimen mapping

9 Percentage of regimens starting Total regimens starting from April 2014 for paediatric patients* matching OPCS 4.7 Regimen List (2014/15) Source: SACT, accessed 5th November 2014 * Patients aged 15 and under at start of regimen Matched OPCS 4.7 regimen Not matched 100% 90% 80% 70% 60% 50% 40% 30% 20% 10% 0% PTCs and POSCUs, ordered by volume

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16 Key messages for paediatrics Collect and submit all activity Use ICCC3 diagnosis and morphology Avoid using bucket codes Include line of treatment (programme number) Include treatment intent Close episodes including outcome fields If in doubt, contact the CIU helpdesk.

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