Return of Organization Exempt From Income Tax

Transcription

1 Form 99 Return of Organization Exempt From Inome Tax Under setion 51(}, 527, or 4947(a}(1) of the Internal Revenue Code (exept blak lung benefit trust or private foundation) OMS No FOUNDATION - GROUP D Employer identifiation Initial ret&m Terminllltld Amended return Appliotion pendtna 6931 ARLINGTON ROAD City, town or post llie, state, and ZIP ode BETHES 2814 Room/suite 2 E Telephone number No No 1 1 Briefly desribe the organization's mission or most signifiant ativities: THE MISSION OF THE CYSTIC FIBROSIS FOUNDATION IS TO ASSURE THE G> ~ ::... " DEVELOPMENT OF THE MEANS TO CURE AND CONTROL CYSTIC FIBROSIS AND :: TO IMPROVE THE QUALITY OF LIFE FOR THOSE WITH THE DISEASE. ~ 2 h~t~;~~-~l:ji~h;~~;~~~;d;;~~ti~~it;~;~;~o~;~;;.;~~l-;;;;;~25%~-~~~~~b; C) all 3 Number of voting members of the governing body (Part VI, line 1a). 17. "' ~ > ;:; " <.. 4 Number of independent voting members of the governing body (Part VI, line 1b) 5 Total number of individuals employed in alendar year 212 (Part V, line 2a). 6 Total number of volunteers (estimate if neessary).. 7a Total unrelated business revenue from Part VIII, olumn (C), line 12. b taxable inome from Form 99-T line 34 8 Contributions and grants (Part VIII, line 1 h) ::> ; 9 Program servie revenue (Part VIII, line 2g) ~ 1 Investment inome (Part VIII, olumn (A), lines 3, 4, and 7d) a: 11 Other revenue (Part VIII, olumn (A), fines 5, 6d, 8, 9, 1, and 11e). 12 Total revenue- add lines 13 Grants and similar amounts paid (Part I, olumn (A), lines 1-3) 14 Benefits paid to or for members (Part I, olumn (A), line 4). :: 15 Salaries, other ompensation, employee benefits (Part I, olumn (A), lines 5-1). ~ 16a Professional fundraising fees (Part I, olumn (A), line 11e) ~ b T~tal fundraising expenses (Part I, olumn (D),Iine25)..,...!.2-I~.!.Q~~= w 17 Other expenses (Part I, olumn (A), lines 11a-11d, 11f-24e). 18 Total expenses. Add lines (must equal Part I, olumn (A), line 25) Subtrat line 18 from line 12 Under penalties of perjury, 1 delare that 1 have examined this return, Inluding aompanying shedules and statements, and to the best of my knowledge and belief, it is true, orret, and omplete. Delaration of pre~ other than offier) is based on all information of whih preparer has any knowledge. Sign Here ~ROBERT J. BEALL, PH.D. ~ Type or print name and title Print/Type preparer's marne I Prep!RI's signal )'-)././-71 Date PRESIDENT & CEO Date _j Chek U If I PTIN Paid DAVID J. TRIMNER ~ 8/7 /2l3!self-emplayed P Preparer ~:.:.:..=.:::...;::..:...::;====------' ' 1 3 Use Only Firm's name... BDO USA, LLP Flrm'sEJN Firm's address llio- 845 GREENSBORO DRIVE 7TH FLOOR MCLEAN VA Phaneno May the IRS disuss this return with the preparer shown above? (see instrutions) I I Yes I I No For Paperwork Redution At Notie, see the separate instrutions. 2E L43V Form 99 (212)

2 CYSTIC FIBROSIS FOUNDATION - GROUP Form 99 (212) Page 2 1@11!1 Statement of Program Servie Aomplishments Chek if Shedule ontains a response to any question in this Part Ill Briefly desribe the organization's mission: ATTACHMENT 2 2 Did the organization undertake any signifiant program servies during the year whih were not listed on the prior Form 99 or 99-EZ? If "Yes," desribe these new servies on Shedule Yes [!] No 3 Did the organization ease onduting, or make signifiant hanges in how it onduts, any program servies? Yes [!] No If 'Yes," desribe these hanges on Shedule. 4 Desribe the organization's program servie aomplishments for eah of its three largest program servies, as measured by expenses. Setion 51()(3) and 51()(4) organizations are required to report the amount of grants and alloations to others, the total expenses, and revenue, if any, for eah program servie reported. 4a (Code: ) (Expenses$ 96, 357, 59. inluding grants of$ ) (Revenue $ ~ ~) MEDICAL PROGRAMS: THE CYSTIC FIBROSIS FOUNDATION HAS 8 OFFICES IN 39 STATES THAT HELP TO COMMUNICATE AND DISTRIBUTE INFORMATION ABOUT SCIENTIFIC STUDIES AND INVESTIGATIONS, CYSTIC FIBROSIS CENTERS AND OTHER MEDICAL PROGRAMS. 4b (Code: )(Expenses$ 7, 245, 456 inludinggrantsof$ )(Revenue$ ~ i...) PUBLIC INFORMATION AND EDUCATION: TO BROADEN ITS REACH AND TO SUPPORT ITS MISSION, THE CYSTIC FIBROSIS FOUNDATION HAS PROGRAMS DESIGNED TO INFORM CYSTIC FIBROSIS PATIENTS, THEIR FAMILIES AND THE GENERAL PUBLIC REGARDING THE DISEASE. IN 212, CHAPTER OFFICES PREPARED AND DISTRIBUTED EDUCATIONAL MATERIALS TO THE CF COMMUNITY, INCLUDING AUDIO AND VISUAL AIDS, EHIBITS AND CORRESPONDENCE. THE CHAPTER OFFICES ALSO MADE AVAILABLE UP TO 22 PUBLICATIONS AND 9 INFORMATIONAL WEBCASTS THAT WERE DEVELOPED SPECIFICALLY FOR THE CF COMMUNITY BY THE CYSTIC FIBROSIS FOUNDATION. 4 (Code: )(Expenses$ 4,a3o, 3o5. inluding grantsof$ )(Revenue$ ~ ~) COMMUNITY SERVICE PROGRAMS: THE CYSTIC FIBROSIS FOUNDATION PROVIDES YEAR-ROUND EFFORTS TO EDUCATE, INFORM AND EMPOWER PATIENTS AND THEIR FAMILIES ABOUT THE LATEST DEVELOPMENTS IN TREATMENT AND CARE. THE PROGRAMS ARE DESIGNED TO HELP THE GENERAL PUBLIC IN THE DETECTION OF THE DISEASE BY PROVIDING A REFERRAL SERVICE AND-HANDLING INQUIRIES CONCERNING THOSE WITH CYSTIC FIBROSIS. APPROIMATELY 27,8 PATIENTS WERE SERVED IN 212, INCLUDING APPROIMATELY 917 PATIENTS WHO WERE NEWLY DIAGNOSED. 4d Other program servies (Desribe in Shedule.) (Expenses$ inluding grants of$ 4e Total program servie expenses..,.. 18,433, E L43V ) (Revenue$ Form 99 (212)

3 Form 99 (212) Cheklist of Required Shedules CYSTIC FIBROSIS FOUNDATION - GROUP Is the organization desribed in setion 51()(3) or 4947(a)(1) (other than a private foundation)? If "Yes," omplete Shedule A Is the organization required to omplete Shedule B, Shedule of Contributors (see instrutions)? Did the organization engage in diret or indiret politial ampaign ativities on behalf of or in opposition to andidates for publi offie? If "Yes, omplete Shedule C, Part Setion 51()(3) organizations. Did the organization engage in lobbying ativities, or have a setion 51(h) eletion in effet during the tax year? If "Yes," omplete Shedule C, Part /1 4 5 Is the organization a setion 51()(4), 51 ()(5), or 51 ()(6) organization that reeives membership dues, assessments, or similar amounts as defined in Revenue Proedure 98-19? If "Yes: omplete Shedule C, Part Ill Did the organization maintain any donor advised funds or any similar funds or aounts for whih donors have the right to provide advie on the distribution or investment of amounts in suh funds or aounts? If "Yes, omplete Shedule D, Part I Did the organization reeive or hold a onservation easement, inluding easements to preserve open spae, the environment, histori land areas, or histori strutures? If "Yes, omplete Shedule D, Part Did the organization maintain olletions of works of art, historial treasures, or other similar assets? If "Yes, omplete Shedule D, Part Did the organization report an amount in Part, line 21, for esrow or ustodial aount liability; serve as a ustodian for amounts not listed in Part ; or provide redit ounseling, debt management, redit repair, or debt negotiation servies? If "Yes, omplete Shedule D, Part N Did the organization, diretly or through a related organization, hold assets in temporarily restrited endowments, permanent endowments, or quasi-endowments? If "Yes, omplete SheduleD, Part V If the organization's answer to any of the following questions is "Yes," then omplete Shedule D, Parts VI, VII, VIII, I, or as appliable. a Did the organization report an amount for land, buildings, and equipment in Part, line 1? If "Yes," omplete Shedule D, Part VI : b Did the organization report an amount for investments-other seurities in Part, line 12 that is 5% or more of its total assets reported in Part, line 16? If "Yes, omplete Shedule D, Part VII Did the organization report an amount for investments-program related in Part, line 13 that is 5% or more of its total assets reported in Part, line 16? If "Yes, omplete Shedule D, Part V/ d Did the organization report an amount for. other assets in Part, line 15 that is 5% or more of its total assets reported in Part, line 16? If "Yes, omplete Shedule D, Part I e Did the organization report an amount for other liabilities in Part, line 25? If "Yes, omplete Shedule D, Part f Did the organization's separate or onsolidated finanial statements for the tax year inlude a footnote that addresses the organization's liability for unertain tax positions under FIN 48 (ASC 74)? If "Yes. omplete SheduleD, Part.. 12 a Did the organization obtain separate, independent audited finanial statements for the tax year? If "Yes," omplete Shedule D, Parts I and II b Was the organization inluded in onsolidated, independent audited finanial statements for the tax yea? If "Yes, and if the organization answered "No" to line 12a, then ompleting SheduleD, Parts I and II is optional.. 13 Is the organization a shool desribed in setion 17{b)(1)(A)(ii)? If "Yes, omplete Shedule E a Did the organization maintain an offie, employees, or agents outside of the United States?..... b Did the organization have aggregate revenues or expenses of more than $1, from grantmaking, fundraising, business, investment, and program servie ativities outside the United States, or aggregate foreign investments valued at $1, or more? If "Yes," omplete Shedule F, Parts I and IV Did the organization report on Part I, olumn (A), line 3, more than $5, of grants or assistane to any organization or entity loated outside the United States? If "Yes, omplete Shedule F, Parts II and N Did the organization report on Part I, olumn (A), line 3, more than $5, of aggregate grants or assistane to individuals loated outside the United States? If "Yes, omplete Shedule F, Parts Ill and IV Did the organization report a total of more than $15, of expenses for professional fundraising servies on Part I, olumn (A), lines 6 and 11e? If "Yes, omplete Shedule G, Part I (see instrutions) Did the organization report more than $15, total of fundraising event gross inome and ontributions on Part VIII, lines 1 and Sa? If "Yes, omplete Shedule G, Part II Did the organization report more than $15, of gross inome from gaming ativities on Part VIII, line 9a? If "Yes, omplete Shedule G, Part /II 19 2 a Did the organization operate one or more hospital failities? If "Yes, omplete Shedule H.... 2a b If "Yes" to line 2a, did the organization attah a opy of its audited finanial statements to this return?.. 2b Form 99 (212) 2E L43V 11a 11b 11 11d 11e 11f 12a 12b 13 14a 14b Yes Page3 No

4 \,;J.l'\.VU.C 4 21 Did the organization report more than $5, of grants and other assistane to any government or organization in the United States on Part I, olumn (A), line 1? If "Yes, omplete Shedule I, Parts 1 and Did the organization report more than $5, of grants and other assistane to individuals in the United States on Part I, olumn (A), line 2? If "Yes, omplete Shedule I, Parts I and Ill ~-=~--+-x- 23 Did the organization answer ''Yes" to Part VII, Setion A, line 3, 4, or 5 about ompensation of the organization's urrent and former offrers, diretors, trustees, key employees, and highest ompensated employees? If "Yes, omplete Shedule J =-=-!-~-- 24 a Did the organization have a tax-exempt bond issue with an outstanding prinipal amount of more than $1, as of the last day of the year, that was issued after Deember 31, 22? If "Yes: answer lines 24b through 24d and omplete Shedule K If "No," go to line "'-'""'-i--+-b Did the organization invest any proeeds of tax-exempt bonds beyond a temporary period exeption? "-~+--+- Did the organization maintain an esrow aount other than a refunding esrow at any time during the year to defease any tax-exempt bonds? t-=-.:..;:;..t--+- d Did the organization at as an "on behalf of' issuer for bonds outstanding at any time during the year? f-"--'-= a Setion 51()(3) and 51()(4) organizations. Did the organization engage in an exess benefit transation with a disqualified person during the year? If "Yes, omplete Shedule L, Part I F== =b Is the organization aware that it engaged in an exess benefit transation with a disqualified person in a prior year, and that the transation has not been reported on any of the organization's prior Forms 99 or 99-EZ? If "Yes, omplete Shedule L, Part I J-==-if---t-- 26 Was a loan to or by a urrent or former offier, diretor, trustee, key employee, highly ompensated employee, or disqualified person outstanding as of the end of the organization's tax year? If "Yes, omplete Shedule L, Part II. ro~t Did the organization provide a grant or other assistane to an offier, diretor, trustee, key employee, substantial ontributor or employee thereof, a grant seletion ommittee member, or to a 35% ontrolled entity or family member of any of these persons? If "Yes, omplete Shedule L, Part Ill.... t--'--1--t-- 28 Was the organization a party to a business transation with one of the following parties (see Shedule L, Part IV instrutions for appliable filing thresholds, onditions, and exeptions): a A urrent or former offier, diretor, trustee, or key employee? If "Yes, omplete Shedule L, Part IV.... Fo=.+--+-b A family member of a urrent or former offier, diretor, trustee, or key employee? If "Yes, omplete Shedule L, Part IV F=t--t--=x An entity of whih a urrent or former offier, diretor, trustee, or key employee (or a family member thereof) was an offier, diretor, trustee, or diret or indiret owner? If "Yes, omplete Shedule L, Part IV ~-==-= Did the organization reeive more than $25, in non-ash ontributions? If "Yes, omplete Shedule M 3 Did the organization reeive ontributions of art, historial treasures, or other similar assets, or qualified onservation ontributions? If "Yes, omplete Shedule M Did the organization liquidate, terminate, or dissolve and ease operations? If "Yes: omplete Shedule N, Part/ Did the organization sell, exhange, dispose of, or transfer more than 25% of its net assets? If "Yes, omplete Shedule N, Part II Did the organization own 1% of an entity disregarded as separate from the organization under Regulations setions and ? If "Yes," omplete SheduleR, Part I Was the organization related to any tax-exempt or taxable entity? If "Yes, omplete Shedule R, Part II, Ill, or IV, and Part V. line t--=-..:.-...j--t-- 35 a Did the organization have a ontrolled entity within the meaning of setion 512(b)(13)? "-'=-i--+- b If ''Yes" to line 35a, did the organization reeive any payment from or engage in any transation with a ontrolled entity within the meaning of setion 512(b)(13)? If "Yes," omplete SheduleR, Part V,line "-'=-if---t-- 36 Setion 51()(3) organizations. Did the organization make any transfers to an exempt non-haritable related organization? If "Yes, omplete Shedule R, Part V. line ~=-!--+ ;.:- 37 Did the organization ondut more than 5% of its ativities through an entity that is not a related organization and that is treated as a partnership for federal inome tax purposes? If "Yes, omplete Shedule R, Part V t--=-' Did the organization omplete Shedule and provide explanations in Shedule for Part VI, lines 11 b and 38 Form 99 (212) 2E L43V

5 IUMifJ CYSTIC FIBROSIS FOUNDATION - GROUP Fonn 99 (212) Statements Regarding other IRS Filings and Tax Compliane Chek if Shedule ontains a response to any Question in this Part V. 1 a Enter the number reported in Box 3 of Form Enter -- if not appliable... I 1 a I 917 b Enter the number of Forms W-2G inluded in line 1a. Enter -- if not appliable.... f 1b 1 17 Did the organization omply with bakup withholding rules for reportable payments to vendors and reportable gaming (gambling) winnings to prize winners? a Enter the number of employees reported on Form W-3, Transmittal of Wage and Tax I I PageS... o Statements, filed for the alendar year ending with or within the year overed by this return. 2a 47 b If at least one is reported on line 2a, did the organization file all required federal employment tax returns? 2b Note. If the sum of lines 1 a and 2a is greater than 25, you may be required toe-file (see instrutions).... 3a Did the organization have unrelated business gross inome of $1, or more during the year? a b If "Yes," has it filed a Form 99-T for this year? If "No: provide an explanation in Shedule l--"-~l--~-- 3b 4a At any time during the alendar year, did the organization have an interest in, or a signature or other authority over, a finanial aount in a foreign ountry (suh as a bank aount, seurities aount, or other finanial aount)? a b If "Yes," enter the name of the foreign ountry:.., See instrutions for filing requirements for Form TD F , Report of Foreign Bank and Finanial Aounts. sa Was the organization a party to a prohibited tax shelter transation at any time during the tax year?..... b Did any taxable party notify the organization that it was or is a party to a prohibited tax shelter transation? If ''Yes" to line Sa or 5b, did the organization file Form 8886-T? a Does the organization have annual gross reeipts that are normally greater than $1,, and did the organization soliit any ontributions that were not tax dedutible as haritable ontributions?..... b If ''Yes," did the organization inlude with every soliitation an express statement that suh ontributions or gifts were not tax dedutible? Organizations that may reeive dedutible ontributions under setion 17(). a Did the organization reeive a payment in exess of $75 made partly as a ontribution and partly for goods and servies provided to the payor? b If "Yes," did the organization notify the donor of the value of the goods or servies provided?.... Did the organization sell, exhange, or otherwise dispose of tangible personal property for whih it was required to file Form 8282?. f f d If "Yes," indiate the number of Forms 8282 filed during the year L.!.7::.d-L e Did the organization reeive any funds, diretly or indiretly, to pay premiums on a personal benefit ontrat?... t Did the organization, during the year, pay premiums, diretly or indiretly, on a personal benefit ontrat? g If the organization reeived a ontribution of qualified intelletual property, did the organization file Form 8899 as required?. h If the organization reeived a ontribution of ars, boats, airplanes, or other vehiles, did the organization file a Form 198-C? 8 Sponsoring organizations maintaining donor advised funds and setion 59(a)(3) supporting organizations. Did the supporting organization, or a donor advised fund maintained by a sponsoring organization, have exess business holdings at any time during the year? Sponsoring organizations maintaining donor advised funds. a Did the organization make any taxable distributions under setion 4966?.... 9a b Did the organization make a distribution to a donor, donor advisor, or related person?.....!-=-'=-+-: b 1 Setion 51()(7) organizations. Enter. a Initiation fees and apital ontributions inluded on Part VIII, line II-1-!.:~a~' ~ b Gross reeipts, inluded on Form 99, Part VIII, line 12, for publi use of lub failities.. 1b 11 Setion 51()(12) organizations. Enter: a Gross inome from members or shareholders l-1:.:1:..::a= b Gross inome from other soures (Do not net amounts due or paid to other soures against amounts due or reeived from them.) L1.:.1!.:b~-----l 12a Setion 4947(a)(1) non-exempt haritable trusts. Is the organization filing Form 99 in li~u of torm 141? l-1""2;;.;a+-+-- b If "Yes," enter the amount of tax-exempt interest reeived or arued during the year. IL1:..:2~b~dl Setion 51()(29) qualified nonprofit health insurane issuers. a Is the organization liensed to issue qualified health plans in more than one state? l-1.:.:3~a:..r--+- Note. See the instrutions for additional information the organization must report on Shedule. b Enter the amo~nt of reserves the organization is required to maintain by the states in whih the organization is liensed to issue qualified health plans ll-1!.:3~b:::.'+-l----~ Enter the amount of reserves on hand L1.:.:3~=..L f--f-- 14a Did the organization reeive any payments for indoor tanning servies during the tax year? '-'-=+--t-..:.;:_ 14a b If ''Yes," has it filed a Form 72 to reoort these oavments? If "No orovide an exolanation in Shedule 14b 2E 14 HlOO L43V 1 5a 5b S 6a 6b 7a 7b 7 7e 7f 7g 7h Yes ' --- No Fam 99 (212)

6 lifiifjl Goveman~, Management, and Dislosure For eah "Yes ~~nse to lines 2 through 7~- b;l~:: :~; for ~ :'~o: response to ltne Ba, Bb, or 1 Ob below, desribe the irumstanes, proesses, or hanges in Shedule. See instrutions. Chek if Shedule ontains a response to any question in this Part VI [] Setion A. Govermna Bodv and Manaaement 1 a Enter the number of voting members of the governing body at the end of the tax year a 1 If there are material differenes in voting rights among members of the governing body, or if the governing body delegated broad authority to an exeutive ommittee or similar ommittee, explain in Shedule. b Enter the number of voting members inluded in line 1 a, above, who are independent. 1 b 1 E 2 Did any offier, diretor, trustee, or key employee have a family relationship or a business relationship with any other offier, diretor, trustee, or key employee? Did the organization delegate ontrol over management duties ustomarily performed by or under the diret supervision of offiers, diretors, or trustees, or key employees to a management ompany or other person? Did the organization make any signifiant hanges to its governing douments sine the prior Form 99 was filed? Did the organization beome aware during the year of a signifiant diversion of the organization's assets? Did the organization have members or stokholders? a Did the organization have members, stokholders, or other persons who had the power to elet or appoint one or more members of the governing body? a b Are any governane deisions of the organization reserved to (or subjet to approval by) members, stokholders, or persons other than the governing body? b 8 Did the organization ontemporaneously doument the meetings held or written ations undertaken during the year by the following: a The governing body? Sa b Eah ommittee with authority to at on behalf of the governing body? b 9 Is there any offier, diretor, trustee, or key employee listed in Part VII, Setion A, who annot be reahed at the organization's m ailino address? If "Yes, orovide the names and addresses in Shedule Setion B. Poliies (This Setion B reauests information about ooliies not reauired bv the Internal Revenue Code.) Yes No 1 Oa Did the organization have loal hapters, branhes, or affiliates? b If 'Yes," did the organization have written poliies and proedures governing the ativities of suh hapters, affiliates, and branhes to ensure their operations are onsistent with the organization's exempt purposes? a Has the organization provided a omplete opy of this Form 99 to all members of its governing body before filing the form?.. b Desribe in Shedule the proess, if any, used by the organization to review this Form a Did the organization have a written onflit of interest poliy? If "No, go to line b Were offiers, diretors, or trustees, and key employees required to dislose annually interests that ould give rise to onflits? Did the organization regularly and onsistently monitor and enfore ompliane with the poliy? If "Yes, desribe in Shedule how this was done Did the organization have a written whistleblower poliy? Did the organization have a written doument retention and destrution poliy? Did the proess for determining ompensation of the following persons inlude a review and approval by independent persons, omparability data, and ontemporaneous substantiation of the deliberation and deision? a The organization's CEO, Exeutive Diretor, or top management offiial b Other offiers or key employees of the organization If ''Yes" to line 15a or 15b, desribe the proess in Shedule (see instrutions). 16a Did the organization invest in, ontribute assets to, or partiipate in a joint venture or similar arrangement with a taxable entity during the year? b If 'Yes," did the organization follow a written poliy or proedure requiring the organization to evaluate its partiipation in joint venture arrangements under appliable federal tax law, and take steps to safeguard the organization's exempt status with respet to suh arrangements? Setion C. Dislosure 1a 1b 11a 12a 12b a 15b 17 List the states with whih a opy of this Form 99 is required to be filed.,.._a~'t~f_!i_f1~~1'--~ Setion 614 requires an organization to make its Forms 123 (or 124 if appliable), 99, and 99-T (Setion 51()(3)s only) available for publi ins~tion. Indiate ho~ you made these available. Chek all that app~.. llil Own website u Another's websrte m Upon request D Other (explam m Shedule ) 19 Desribe in Shedule whether (and if so, how), the organization made its governing douments, onflit of interest poliy, and finanial statements available to the publi during the tax year. 2 State the name, physial address, and telephone number of the person who possesses the books and reords of the Organization:... ROBERT J. BEALL, PH.D ARLINGTON ROAD, STE 2 BETHESDA, MD Form 99 (212) 2E L43V 16a 16b Yes No

7 Form 99 (212) Page 7 1@1911 Compensation of Offiers, Diretors, Trustees, Key Employees, Highest Compensated Employees, and Independent Contrators Chek if Shedule ontains a response to any question in this Part VII li Setion A. Offiers, Diretors, Trustees, Key Employees, and Highest Compensated Employees 1 a Complete this table for all persons required to be listed. Report ompensation for the alendar year ending with or within the organization's tax year. List all of the organization's urrent offiers, diretors, trustees (whether individuals or organizations), regardless of amount of ompensation. Enter -- in olumns (D), (E), and (F) if no ompensation was paid. List all of the organization's urrent key employees, if any. See instrutions for definition of "key employee." List the organization's five urrent highest ompensated employees (other than an offier, diretor, trustee, or key employee) who reeived reportable ompensation (Box 5 of Form W-2 and/or Box 7 of Form 199-MISC) of more than $1, from the organization and any related organizations. List all of the organization's former offiers, key employees, and highest ompensated employees who reeived more than $1, of reportable ompensation from the organization and any related organizations. List all of the organization's former diretors or trustees that reeived, in the apaity as a former diretor or trustee of the organization, more than $1, of reportable ompensation from the organization and any related organizations. List persons in the following order: individual trustees or diretors; institutional trustees; offiers; key employees; highest ompensated employees; and former suh persons. Chek this box if neither the organization nor any related organization ompensated any urrent offier, diretor, or trustee. Position (A) () (B) (do not hek more than one Name and lltle Aversge box, unless person Is both an Reportable hours per offier and a diretor/trustee) ompensation ~eek (list a,nul , ,-'-1 from 5' :: ~ ;o;: CD:!: '11 ho to the urs r ;;_e, "', ~ -5. 'l related - <.-_~.. - "'".. ::s organization _(~}_~-~-~--~-~-~~I?..Y..~~--<? ~} f (~} (C) organizations ~if "'" ~ 3 ~! ~ (W-V199-MISC) below dotted!!. "' '2. '" o ~2!!. '<go 3 line).,. g, f i!!. (E) Reportable ompensation from related organizations r:j'j-2/199-misc) (F) Estimated amount of other ompensation from the organization and related organizations --~> f (~) f (~) El L. {~ f _{~) ~~ ) J!~l f !~ f !~ f J~4) i Form 99 (212)

8 Form 99 (212) :,; Setion A. Offiers, Diretors, Trustees, Key Employees, and Highest Compensated Employees (ontinued) (A) Name and title j_~~l --- ~!~) (C) Position (D) (B) (do not hek more than one Avarage box. unless p615n Is both an Reporteble hours per offier and a diretor/trustee) ompensation [week (list anvt-::--,---,--,--,.----,~ from holi's for!l 5. i ~ S!i 61 the related ~ < Ff ~ 3 o z ~ organization organizations ~ ~!!.~ "D i g ~ (W MISC) below dotted.. 2- ~ 3 Hne) 2!1 - i f i (E) Reportable ompensation from related organizations (W MISC) (F) Estimated amount of other ompensation from the organization and related organizations PageS (17) J 18) ---- J!~l l~~) J~~) ~?:) ~~)_ J~~) {25) b Sub-total ,. Total from ontinuation sheets to Part VII, Setion A..,. 121, 626 2, 254, 775 d Total(addlines1band1) ,. 121,626 2,254,775 2 Total number of individuals Onluding but not limited to those listed above) who reeived more than $1, of reportable ompensation from the organization..,. 1 3 Did the organization list any fonner offier, diretor, or trustee, key employee, or highest ompensated : ~: 533, ,647 Yes No employee on line 1 a? If "Yes, omplete Shedule J for suh individual 3 4 For any individual listed on line 1 a, is the sum of reportable ompensation and other ompensation from the organization and related organizations greater than $15,? If "Yes, omplete Shedule J for suh individual. ' 4 5 Did any person listed on line 1 a reeive or arue ompensation from any unrelated organization or individual ;.. -:.. : for servies rendered to the organization? If "Yes, omplete Shedule J for suh person 5 Setion B. Independent Contrators 1 Complete this table for your five highest ompensated Independent ontrators that reeived more than $1, of ompensation from the organization. Report ompensation for the alendar year ending with or within the organization's tax year. ATTACHMENT 4 (A) (B) (C) Name and business address Desription of servies Compensation 2 Total number of independent ontrators Qnluding but not limited to those listed above) who 1~:~~?; _,_.. : reeived more than $1, of ompensation from the organization..,. 9 ~- _,._.. ' Form 99 (212)

9 Fonn 99 (212) CYSTIC FIBROSIS FOUNDATION - GROUP lillffiiii!l Statement of Revenue Page9 Chek if Shedule ontains a response to any question in this Part VIII n (A) (B) (C) (D) Total revenue Related r Unrelated Revenue exempt business exluded from tax fund ion revenue under setions.. revenue 512, 513, or 514 JS!l 1a Federated ampaigns 1a f:::j oo b Membership dues 1b _E ~~ F undraising events d Related organizations 1d "=.;E -. - e Government grants (ontributions) 1e ofl) -... f All other onlribu1ions, gifts. grants, ::IJ:.a_ :so and similar amounts not inluded above 1f "D o g Nonash ontribu1ions inluded in lines 1 a-1 t. $ Ua Cll :::1 Cll.. > Cll 2a :: b u "E fl) d E e f D) h Total. Add lines 1a-1f f All other program servie revenue Business Code... D. g TotaL Add lines 2a-2f Investment inome (inluding dividends, interest, and other similar amounts) Inome from investment of tax-exempt bond proeeds... 5 Royalties... Q) Real (ii) Personal 6a b 7a Gross rents Less: rental expenses Rental inome or (loss) d Net rental inome or (loss) b (i) Seurities Gross amount from sales of assets other than inventory Less: ost or other basis (iij Other and sales expenses Gain or (loss).. d Net gain or (loss)..... Cl) Ba Gross inome from fundraising :I events (not inluding$ 9,36, 322. Cl) > Cl) of ontributions reported on line 1 ). :::... See Part IV, line 18 a Cl) b Less: diret expenses b Net inome or (loss) from fundraising events a Gross inome from gaming ativities. See Part IV, line 19.. a b Less: diret expenses b Net inome or (loss) from gaming ativities a Gross sales of inventory, less returns and allowanes 11a b Less: ost of goods sold b Net inome or (loss) from sales of inventory..... Misellaneous Revenue Business Code b d All other revenue a e TotaL Add lines 11a-11d Total revenue. See instrutions E L43V ' Form 99 (212)

10 Form 99 (212) CYSTIC FIBROSIS FOUNDATION - GROUP lilffilfj Statement of Funtional Expenses Setion 51 ()(3) and 51 ()( 4) organizations must omplete all olumns All other organizations must omplete ol umn (A) Page1 Chek if Shedule ontains a response to any question in this Part I I I Do not inlude amounts reported on lines 6b, 7b, (A) (B) (C) (D) Total expenses Program servie Management and Fund raising Bb, 9b, and 1b of Part VIII. expenses genesal expenses epenses 1 Grants and other assistane to governments and organizations in the United States. See Part N, line 21 2 Grants and other assistane to individuals in the United States. See Part IV, line Grants and other assistane to governments, organizations, and individuals outside the United States. See Part IV, lines 15 and Benefits paid to or for members... 5 Compensation of urrent offiers, diretors, trustees, and key employees Compensation not inluded above, to disqualified persons (as defined under setion 4958(f)(1 )) and persons desaibed in setion 4958()(3)(B)... 7 Other salaries and wages. 14,739,885. 8,991,33. 2,358,382. 3,39, Pension plan aruals and bntributions (inlude setion 41(k) and 43(b) employer ontributions) 597, ,79. 95, , Other employee benefits.. 1,76,39. 1,73, , , Payroll taxes ,284, , , , Fees for servies (non-employees): a Management... b ( Legal Aounting d Lobbying e Professional fundraising servies. See Part N, line 17 f Investment management fees (..... g Other. (If line 11g amount exeeds 1% of line 25, olumn (A) amount, list line 11g _.,ses on Shedule.).. 11,875. 7,244. 1, 9. 2, Advertising and promotion 6,375. 3,889. 1,2. 1, Offie expenses... 2,866,992. 1,748, , , Information tehnology ,534, , , , Royalties, Oupany , 31, 72. 1,49, , , Travel , , , , Payments of travel or entertainment expenses for any federal, state, or loal publi offiials 19 Conferenes, onventions, and meetings. 182, , , , Interest ( Payments to affiliates ,63, ,63, Depreiation, depletion, and amortization 352, , , , Insurane Other epenses. Itemize expenses not overed abow (List misellaneous expenses in line 24e. If line 24e amount exeeds 1% of line 25, olumn (A) amount, list line 24e epenses on Shedule.) a~~~~~~eqq~ b , , ,28. 96,613. d e All other expenses Total funtional expenses. Add lines 1 throuah 24e 118,899,9. 18,433,351. 4,293,63. 6,172, Joint osts. Complete this line only if the organization reported in olumn (B) joint osts from a ombined eduational ampaign and fundraising soliitation. Chek here... D if following SOP 98-2 (ASC ).. 2E L43V Form 99 (212)

11 CYSTIC FIBROSIS FOUNDATION - GKUU~ Form 99 (212) Pag~ 11 llilffii -~ Balane Sheet Chek it Shedule C..UIIli:llll:> a ll:';;>j.iuii;;>t: to anv naa.,.dil)n ~ (A) Beginning of year (B) End of year 1 Cash - non-interest-bearing Savings and temporary ash investments Pledges and grants reeivable, net Aounts reeivable, net Loans and other reeivables from urrent and former offiers, diretors, trustees, key employees, and highest ompensated employees. Complete Part II of Shedule L ( 6 Loans and other reeivables from othe~ di;quaiified Pe.:SOO~ (as. d~tinild" u~i~ s~tioo (f)(1)), persons desribed in setion 4958()(3)(B). and oaitributing employers and sponsoring organizations of setion 51()(9) voluntary employees' benefiiary organizations (see instrutions). Complete Part II of Shedule L ( 6 -II) Cl) 7 Notes and loans reeivable, net : : : : : : : : : : : 7 II) II) 8 Inventories for sale or use 8 Q <( Prepaid expenses and deferred harges a Land, buildings, and equipment: ost or other basis. Complete Part VI of SheduleD l1a b Less: aumulated depreiation... 11ob ( Investments - publily traded seurities... ( Investments - other seurities. See Part IV, line ( 13 Investments- program-related. See Part IV, line Intangible assets.... ( Other assets. See Part IV, line 11 ( 15. I ~6 Total assets. Add lines 1 throuah 15 (must ~a~~~ ii~e-34) Aounts payable and arued expenses Grants payable Deferred revenue ( Tax-exempt bond liabirlties (... 2 II) 21 Esrow or ustodial aount liability. Complete Part IV of SheduleD 21 Cl)... ~ 22 Loans and other payables to urrent and former offiers, diretors, : Ill trustees, key employees, highest ompensated employees, and :::i disqualified persons. Complete Part II of Shedule L... ( Seured mortgages and notes payable to unrelated third parties Unseured notes and loans payable to unrelated third parties. ( -~ 25 Other liabilities (inluding federal inome tax. payables to related third parties, and other liabilities not inluded on lines 17-24). Complete Part of Shedule D ( Total liabilities. Add lines 17 through ( 26 Organizations that follow SFAS 117 (ASC 958), hek here.,... Wand ID Cl) omplete lines 27 through 29, and lines 33 and Unrestrited net assets ( ~27 Ill "iii ( 28 Temporarily restrited net assets "D ( 29 Permanently restrited net assets ::I u.. Organizations that do not follow SFAS 117 (ASC 958), hek here... o~~-... omplete lines 3 through 34. ~ 3 Capital stok or trust prinipal, or urrent funds Cl) Ill 31 Paid-in or apital surplus, or land, building, or equipment fund 31 II)... <( 32 Retained earnings, endowment, aumulated inome, or other funds 32 Cl) 33 Total net assets or fund balanes ( z Total liabilities and net assets/fund b~~n~s:... ( 34 F:vm 99 (212) I I 2E L43V

12 Fonn 99 (212) lillijf.11 CYSTIC FIBROSIS FOUNDATION - GROUP Reoniliation of Net Assets ontains a r<>,nnln., 1 Total revenue (must equal Part VIII, olumn (A), line 12} Total expenses (must equal Part I, olumn (A}, line 25} Revenue less expenses. Subtrat line 2 from line Net assets or fund balanes at beginning of year (must equal Part, line 33, olumn (A)) 5 Net unrealized gains (losses) on investments Donated servies and use of failities Investment expenses Prior period adjustments Other hanges in net assets or fund balanes (explain in Shedule ) Net assets or fund balanes at end of year. Combine lines 3 through 9 (must equal Part, line 1 Chek if Shedule ontains a response to any question in this Part II..... Aounting method used to prepare the Form 99: Cash!]] Arual Other----- If the organization hanged its method of aounting from a prior year or heked "Other," explain in Shedule. 2a Were the organization's finanial statements ompiled or reviewed by an independent aountant?... If "Yes," hek a box below to indiate whether the finanial statements for the year were ompiled or reviewed on a separate basis, onsolidated basis, or both: Separate basis Consolidated basis Both onsolidated and separate basis b Were the organization's finanial statements audited by an independent aountant? If "Yes," hek a box below to indiate whether the finanial statements for the year were audited on a s~rate basis, onsolidated basis, or both: U Separate basis ~ Consolidated basis Both onsolidated and separate basis If ''Yes" to line 2a or 2b, does the organization have a ommittee that assumes responsibility for oversight of the audit, review, or ompilation of its finanial statements and seletion of an independent aountant? If the organization hanged either its oversight proess or seletion proess during the tax year, explain in Shedule. 3a As a result of a federal award, was the organization required to undergo an audit or audits as set forth in the Single Audit At and OMS Cirular A-133? b If "Yes," did the organization undergo the required audit or audits? If the organization did not undergo the reauired audit or audits exolain whv in Shedule and desribe anv steos taken to underao suh audits.. o Yes 2a 2b 2 3a 3b Page12 No Foon 99 (212) 2E L43V

13 SCHEDULE A (Form 99 or 99-EZ) Department of the Treasury Internal Rewnue Se!vie Publi Charity Status and Publi Support Complete if the organization is a setion 51()(3) organization or a setion 4947(a)(1) nonexempt haritable trust... Attah to Form 99 or Form 99-EZ.... See separate instrutions. OMB No ~@12 Ooen to Publi InspetiOn Name of the organization CYSTIC FIBROSIS FOUNDATION - GROUP Employer identifiation number RETURN FOR THE CHAPTERS The organization is not a private foundation beause it is: (For lines 1 through 11, hek only one box.) 1 A hurh, onvention of hurhes, or assoiation of hurhes desribed in setion 17(b){1)(A)(i). 2 A shool desribed in setion 17(b)(1){A){ii). (Attah Shedule E.) 3 A hospital or a ooperative hospital servie organization desribed in setion 17(b)(1){A)(iii). 4 A medial researh organization operated in onjuntion with a hospital desribed in setion 17{b){1)(A)(iii). Enter the hospital's name, ity, and state: 5 An organization operated for tlw-be-nefit-;;ra~ol~g~-or-u~lverslty~-;_,ri;;d-or-ope~atedb"ya-gover~~~;;-t~l~~itde;-ribedi;; setion 17(b)(1){A)(iv). (Complete Part II.) 6 A federal, state, or loal government or governmental unit desribed in setion 17(b)(1)(A)(v). 7 [!] An organization that normally reeives a substantial part of its support from a governmental unit or from the general publi desribed in setion 17(b)(1)(A)(vi). (Complete Part II.) 8 A ommunity trust desribed in setion 17(b)(1){A)(vi). (Complete Part II.) 9 An organization that normally reeives: (1) more than 331/3 o/o of its support from ontributions, membership fees, and gross reeipts from ativities related to its exempt funtions -subjet to ertain exeptions, and (2) no more than 331/3% of its support from gross investment inome and unrelated business taxable inome (less setion 511 tax) from businesses aquired by the organization after June 3, See setion 59(a)(2). (Complete Part Ill.) 1 B An organization organized and operated exlusively to test for publi safety. See setion 59(a)(4). 11 An organization organized and operated exlusively for the benefit of, to perform the funtions of, or to arry out the purposes of one or more publily supported organizations desribed in setion 59(a)(1) or setion 59(a)(2). See setion 59(a)(3). Chek the box that desribes the type of supporting organization and omplete lines 11e through 11 h. a Type I b D Type II Type Ill-Funtionally integrated d Type Ill-Non-funtionally integrated e By heking this box, I ertify that the organization is not ontrolled diretly or indiretly by one or more disqualified persons other than foundation managers and other than one or more publily supported organizations desribed in setion 59(a)(1) or setion 59(a)(2). (A) f g h If the organization reeived a written determination from the IRS that it is a Type I, Type II, or Type Ill supporting organization, hek this box D Sine August 17, 26, has the organization aepted any gift or ontribution from any of the following persons? (i) A person who diretly or indiretly ontrols, either alone or together with persons desribed in (ii) Yes No and (iii) below, the governing body of the supported organization? (ii) A family member of a person desribed in (i) above? (iii) A 35% ontrolled entity of a person desribed in (i) or (ii) above? g(l) 11g(ll) 11g(UI) Provide the following information about the supported organization(s). (i) Name of supported (ii)bn (iii} Type of organization pv) Is the (v) Did you notify (vi) Is the (vii) Amount of monetary organization (desribed on lines 1-9 organization in the organization organization in support above or IRC setion al. (I) listed in in ol. (I) of ol. (I) organized (see instrutions}) yo~=~g your support? in the U.S.? Yes No Yes No Yes No (B) (C) (D) (E) Total For Paperwork Redution At Notie, see the InstrutionS for Form 99 or 99-EZ. Shedule A (Form 99 or 99-EZ) 212 2E L43V

14 CYSTIC FIBROSIS FOUNDATION - GROUP Shedule A (Form 99 or99-ez) 212 Page 2 lift#i!l Support Sh~ule for Organizations Desribed in Setions 17(b)(1)(A)(iv) and 17(b)(1)(A)(vi) (Complete only 1f you heked the box on line 5, 7, or 8 of Part I or if the organization failed to qualify under Part Ill. If the organization fails to qualify under the tests listed below, please omplete Part Ill.) s e r 1on A. Pu br 1 Suppart Calendar year (or fisal year beginning in)... (a) 28 (b) 29 () 21 {d) 211 (e) 212 (f) Total 1 Gifts, grants, ontributions, and membership fees reeived. (Do not inlude any "unusual grants.") Tax revenues levied for the organization's benefit and either paid to or expended on its behalf The value of servies or failities furnished by a governmental unit to the organization without harge Total Add lines 1 through The portion of total ontributions by eah person (other than a governmental unit or publily supported organization) inluded on line 1 that exeeds 2"/o of the amount shown on line 11, olumn (f) 6 Publi support. Subtrat line 5 from line s. e1n t BT. otal s up port Calendar year (or fisal year beginning in)... (a) 28 (b) 29 () 21 (d) 211 (e) 212 (f) Total 7 Amounts from line Gross inome from interest, dividends, payments reeived on seurities loans, rents, royalties and inome from similar soures Net inome from unrelated business ativities, whether or not the business is regularly arried on Other inome. Do not inlude gain or loss from the sale of apital assets (Explain in Part N.) -A'l!CH Total support. Add lines 7 through Gross reeipts from related ativities, et. (see instrutions) First five years. If the Form 99 is for the organization's first, seond, third, fourth, or fifth tax year as a setion 5..1(.).(32_. D organization, hek this box and stop here ,... _ 14 Publi support perentage for 212 (line 6, olumn (f) divided by line 11, olumn (f)) % 15 Publi support perentage from 211 Shedule A, Part II, line % 16a 331/3% support test If the organization did not hek the box on line 13, and line 14 is 331/3% or more, hek this box and stop here. The organization qualifies as a publily supported organization ,.. r::ij b 33113% support test If the organization did not hek a box on line 13 or 16a, and line 15 is 33113% or more, hek this box and stop here. The organization qualifies as a publily supported organization ,.. D 17a 1 %-fats-and-irumstanes test If the organization did not hek a box on line 13, 16a, or 16b, and line 14 is 1% or more, and if the organization meets the "fats-and-irumstanes" test, hek this box and stop here. Explain in Part IV how the organization meets the "fats-and-irumstanes test. The organization qualifies as a publily supported organization ,.. D b 1 %-fats-and-irumstanes test If the organization did not hek a box on line 13, 16a, 16b, or 17a, and line 15 is 1% or more, and if the organization meets the "fats-and-irumstanes" test, hek this box and stop here. Explain in Part IV how the organization meets the "fats-and-irumstanes" test. The organization qualifies as a publily supported organization ,. D 18 Private foundation. If the organization did not hek a box on line 13, 16a, 16b, 17a, or 17b, hek this box and see instrutions ,.. D Shedule A (Fonn 99 or 99-CZ) 212 2E122D L43V